Sunday, January 21, 2024

Sunday 1/21/2024 11 AM

 Sunday 1/21/2024 11 AM


My Vine account is unusable until I get 60% of my reviews done. I did 5 more today, so hopefully I get them done in time. A few of the ones I thought I’d already reviewed are listed as not done, which is frustrating.


Gratitude Prompt: 

What are you grateful for? 


R has been really amazing. He is trying so hard to match my energy and keep up with me and my needs. I got my prescription of Adderall refilled last week and I’ve been waking up before noon all week, which is usually really difficult for me. I’ve been staying off my phone until he gets up for the day. He has a test tomorrow to get his stomach ultrasound, to see if the pain, vomiting++++ is an issue with his gallbladder. 

I found out last night that rheumatoid arthritis has a link with Irritable Bowel Diseases like Colitis or Crohn’s, and that the inflammation in the joints and stomach tend to happen at the same time. So from what I read, it’s very likely that he has duodenum Crohn’s disease, which is where the inflammation only affects the upper part of the gastric system. 

His arthritis has not been treated in years, but he was diagnosed with it a long time ago. Maybe before we married? 

So he needs to see a specialist for his arthritis, as it can cause progressive damage when not treated (I only found this out last night when I was reading about it). 

And the kind that affects both the stomach and joints is an autoimmune disease. 

What really frustrates me is that there are specific medications to treat crohns and ulcerative colitis. And the doctor has only been giving him Omeprazole and Famatodine,  which are both OTC medications. 

If he is having a flare-up of UC or Crohn’s, then he needs a corticosteroid prescribed to see if it will help put the flare into remission. I’m angry that they haven’t tried that yet, that there are multiple medications that could help if it is this issue, and they haven’t done anything to actually relieve any of the issues he’s having. Steroids would be a quick way to test/treat this, although it said it could take a month+ to help, so I guess it makes sense not to try both at the same time. 

Ugh I just want my husband to feel better. 


Point is, he feels like crap and has for a long long time, and he’s still pushing himself to think of things that would make me smile and ease my workload and he fucking loves me. He’s anxious and in pain and I’m giving him a hard time about stuff, not because I’m actually upset with him… I’m just also struggling. 


Posted 1/31/2024

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